Frequently Asked Questions
Why should I participate in a Clinical Trial?
There are many reasons why you might choose to join an Alzheimer’s disease clinical trial. You may want to:
- Help others, including future family members, who may be at risk for Alzheimer’s disease disease
- Receive regular monitoring by medical professionals
- Learn about Alzheimer’s disease and your health
- Test new treatments that might work better than those currently available
- Help researchers find new ways to treat and prevent Alzheimer’s disease
- Get information about support groups and resources
- Make a difference by participating and help the next generation lead heathier lives
- Watch this informational video about why your participation in clinical trials is so important, click here. Video courtesy of the Alliance for Aging Research.
What kind of volunteers are needed?
All kinds of people, including healthy volunteers, are needed. According to the NIA/Alzheimer’s disease Disease Education and Referral Center, at least 70,000 volunteers are urgently needed to participate in more than 150 active clinical trials in the U.S. that are testing ways to understand, treat, prevent, or cure the disease.
What are the risks of participating in a clinical trial?
Researchers make every effort to ensure participants’ safety. While there are benefits to participating, all clinical trials have some risk. Before joining a trial, the research team will explain what you can expect, including possible side effects or other risks. You can then make an informed decision about joining the trial.
What else should I consider?
Other issues to consider include managing expectations and motivations, uncertainty, time commitment and location and study partner requirements. Most Alzheimer’s disease disease studies are multi-year and usually require multiple visits to study sites. Many Alzheimer’s disease trials require a caregiver or family member who has regular contact with the person to accompany the participant to study appointments.
How can I find out about Alzheimer’s disease trials and studies?
Does ATRI see Patients?
No, we don’t see patients here. USC ATRI is a coordinating center and not a clinical trial site. Please visit our USC ATRI Studies page for further information on our studies and to find a site in your area.
How can I learn more about clinical trials?
A clinical trial is a kind of research study performed in people and aimed at evaluating a medical, surgical, or behavioral intervention. The National Institute on Aging (NIA) has information about clinical trials pertinent to older people. The NIA tip sheet Clinical Trials and Older People can help you think about why you might consider participating in a clinical trial and how your safety is protected. If you are interested in clinical trials for Alzheimer’s disease disease, the booklet Participating in Alzheimer’s disease Research can help.
- Ask your doctor, who may know about local studies that you can participate in.
How can I sign up for a clinical trial registry or matching service?
USC ATRI has partnered with a variety of clinical trial registries where individuals who are interested in participating in research can voluntarily provide information about themselves. These registries help people connect with clinical investigators and their trials. By signing up, you can help accerlate cures for Alzheimer’s disease and other brain disorders.
Follow these links to sign up for a trial:
- Brain Health Registry
- Alzheimer’s disease Prevention Registry
- The Alzheimer’s disease Association TrialMatch
- Cleveland Clinic’s Healthy Brains