Cecily L. Betz, PhD

Cecily L. Betz, PhD, RN, FAAN is Professor of Clinical Pediatrics, USC Keck School of Medicine, Department of Pediatrics. Dr. Betz serves as the Nursing Director and Research Director of the USC University Center of Excellence in Developmental Disabilities at Children’s Hospital Los Angeles. She is a nationally recognized expert in the field of health care transition planning for youth with special health care needs. Dr. Betz co-edited the first text on health care transition planning entitled, Promoting Health Care Transition Planning for Adolescents with Special Health Care Needs and Disabilities. More recently, she co-edited Transition from Pediatric to Adult Healthcare Services for Young Adults with Long-term Conditions: An International Perspective on Nurses Roles and Interventions. She is the Founder and Editor-in-Chief of Health Care Transitions, an open-access journal. She is the Founder and Editor-in-Chief of the Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) which is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. She has over 200 publications in the field of pediatric nursing and care of children and youth with special health care needs and disabilities. She is the editor of ten pediatric nursing textbooks that have used extensively in pediatric nursing undergraduate and graduate programs and have been translated into several languages. She served as the lead author for the recently published American Nurses Association nursing standards in intellectual and developmental disabilities entitled, Intellectual and developmental disabilities nursing: Scope and standards of practice (3rd ed.). Dr. Betz serves on numerous professional advisory boards at the state and national levels. In 2008, she received the Margaret S. Miles Service Award and in 2018 Barbara A. Larson Humanitarian Award from the Society of Pediatric Nursing for her service and contribution to pediatric nursing.

• TESTING OF THE TRANSITION PREPARATION TRAINING PROGRAM
  NIH · R21NR009415 · Apr 1, 2006 – Mar 31, 2009 · Role: Principal Investigator

• Parents of youth and young adults with intellectual and developmental disabilities: Barriers experienced during transition. J Pediatr Rehabil Med. 2026 Aug 07; 18758894261476176.. View in PubMed
• Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of health care transition planning literature. Health Care Transit. 2026; 4:100147.. View in PubMed
• Nursing standards of practice and persons with intellectual and developmental disabilities: Concepts and competencies. Nurs Outlook. 2026 May-Jun; 74(3):102796.. View in PubMed
• The Unmet Need of Olfactory Testing in Inflammatory Disorders of the Upper Airways-An EAACI Position Paper. Allergy. 2026 Feb 02.. View in PubMed
• Editorial: Advancing the science and practice of health care transition. Health Care Transit. 2025; 3:100123.. View in PubMed
• Novel Retrospective Perspectives of Healthcare Transitions From Emerging Adults With Chronic Conditions: A Quantitative Overview. J Pediatr Health Care. 2026 May-Jun; 40(3):e19-e30.. View in PubMed
• Intellectual and Developmental Disabilities Health Care Transition: Stakeholder Perspectives. Intellect Dev Disabil. 2025 08 01; 63(4):299-314.. View in PubMed
• An Examination of Health Care Transition Experiences Through Parents’ Reflections About Their Sons or Daughters Who Have Intellectual and Developmental Disabilities. Children (Basel). 2025 Jul 04; 12(7).. View in PubMed
• Innovating Nursing Education Through Partnership With Individuals With Intellectual and Developmental Disabilities. J Nurs Educ. 2025 Feb; 64(2):75-80.. View in PubMed
• Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs. Health Care Transit. 2025; 3:100081.. View in PubMed
• Health care transition recommendations for young people with intellectual and developmental disabilities and co-occurring mental health conditions: Stakeholder survey findings. Health Care Transit. 2024; 2:100075.. View in PubMed
• Caregivers’ Perspective on Successful Health Care Transition Outcomes for Adolescents and Young Adults With Special Health Care Needs. J Adolesc Health. 2024 Oct; 75(4):635-641.. View in PubMed
• Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives. Community Ment Health J. 2024 08; 60(6):1104-1116.. View in PubMed
• Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023. Health Care Transit. 2024; 2:100041.. View in PubMed
• Health care transition planning and outcomes: What’s next? Health Care Transit. 2024; 2:100045. Betz CL , Díaz-González de Ferris ME . . View in PubMed
• Health care transition planning for adolescents and emerging adults with intellectual disabilities and developmental disabilities: Distinctions and challenges. J Spec Pediatr Nurs. 2023 07; 28(3):e12415.. View in PubMed
• The Health Care Transitions Journal: Carpe diem! Health Care Transit. 2023; 1:100001. Betz CL , Díaz-González de Ferris ME . . View in PubMed
• Stakeholders’ perspectives on caregiver outcomes for health care transition for adolescents and young adults with special health care needs: A qualitative study. Child Care Health Dev. 2023 11; 49(6):1046-1053.. View in PubMed
• Closing the nursing leadership gap: Leveraging partnerships with people with intellectual disabilities and developmental disabilities. Nurs Outlook. 2022 Nov-Dec; 70(6):783-785.. View in PubMed
• Risk factors for unanticipated hospitalizations in children and youth with spina bifida at an urban children’s hospital: A cross-sectional study. Disabil Health J. 2023 01; 16(1):101373.. View in PubMed
• Health Care Transition Planning: Educational Needs of Pediatric Nurses and Pediatric Nurse Practitioners. J Pediatr Health Care. 2022 Jul-Aug; 36(4):e6-e16.. View in PubMed
• Health care transition planning: A potpourri of perspectives from nurses. J Spec Pediatr Nurs. 2022 07; 27(3):e12373.. View in PubMed
• Measuring health care transition: Across time and into the future. J Pediatr Nurs. 2022 May-Jun; 64:91-101.. View in PubMed
• COVID-19 Special Collection. J Pediatr Nurs. 2022 Jan-Feb; 62:A9-A10.. View in PubMed
• Exploratory study of the provision of academic and health-related accommodations to transition-age adolescents and emerging adults with spina bifida. J Pediatr Rehabil Med. 2022; 15(4):593-605.. View in PubMed
• Health Care Transition Special Collection. J Pediatr Nurs. 2021 Sep-Oct; 60:A13-A14.. View in PubMed
• Independent practice and full practice authority. J Pediatr Nurs. 2021 Jul-Aug; 59:A8-A9.. View in PubMed
• Self-management for youth and young adults with special health needs: protocol for a scoping review of health care transition planning literature. JBI Evid Synth. 2021 07 01; 19(7):1682-1690.. View in PubMed
• Health Care Transition: The Struggle to Define Itself. Compr Child Adolesc Nurs. 2023 Sep; 46(3):162-176.. View in PubMed
• Nursing’s Influence on the Evolution of the Field of Health Care Transition and Future Implications. J Pediatr Health Care. 2021 Jul-Aug; 35(4):408-413.. View in PubMed
• Psychometric Testing of Family Centered Care (FCC) Instrument: A Mixed Methods Analysis of Pediatric Nurses and Their Workplace Perceptions of FCC. J Pediatr Nurs. 2021 Nov-Dec; 61:75-83.. View in PubMed
• Erratum to “Testimony to Our Proud Nursing History: The International Year of the Nurse and Midwife” [Journal of Pediatric Nursing 55C (2020) A7-A8]. J Pediatr Nurs. 2021 May-Jun; 58:117.. View in PubMed
• Understanding the Phenomenon of Health Care Transition: Theoretical Underpinnings, Exemplars of Nursing Contributions, and Research Implications. J Pediatr Health Care. 2021 May-Jun; 35(3):310-316.. View in PubMed
• Racial and Ethnic Disparities Special Collection. J Pediatr Nurs. 2021 Mar-Apr; 57:A7-A8.. View in PubMed
• Nurse competencies for transitions of care: Implications for education and practice. Nurs Forum. 2021 Apr; 56(2):358-364.. View in PubMed
• Reconsidering reviews: the role of scoping reviews in digital medicine and pediatrics. NPJ Digit Med. 2020 Dec 10; 3(1):158.. View in PubMed
• Time Again? Research Priorities in Pediatric Nursing. J Pediatr Nurs. 2021 Jan-Feb; 56:A7-A9.. View in PubMed
• Testimony to Our Proud Nursing History: The International Year of the Nurse and Midwife. J Pediatr Nurs. 2020 Nov – Dec; 55:A7-A8.. View in PubMed
• Survey of US pediatric nurses’ role in health care transition planning: Focus on assessment of self-management abilities of youth and young adults with long-term conditions. J Child Health Care. 2021 09; 25(3):468-480.. View in PubMed
• [Effects of the SARS-CoV-2 pandemic on the otorhinolaryngology university hospitals in the field of medical care]. Laryngorhinootologie. 2020 10; 99(10):694-706.. View in PubMed
• COVID-19 and school return: The need and necessity. J Pediatr Nurs. 2020 Sep – Oct; 54:A7-A9.. View in PubMed
• Editorial Reflections on Now and Then and the Future of Pediatric Nursing. J Pediatr Nurs. 2020 Jul – Aug; 53:A8-A9.. View in PubMed
• Psychosocial outcomes for adults with spina bifida: a scoping review protocol. JBI Evid Synth. 2020 05; 18(5):1135-1143.. View in PubMed
• Everything Old is New again: COVID-19 and Public Health. J Pediatr Nurs. 2020 May – Jun; 52:A7-A8.. View in PubMed
• 2020:International Year of the Nurse and Midwife and the 30th Anniversary of the Society of Pediatric Nurses. J Pediatr Nurs. 2020 Mar – Apr; 51:A8.. View in PubMed
• Smart devices for the management of pediatric asthma: a scoping review protocol. JBI Database System Rev Implement Rep. 2019 11; 17(11):2308-2316.. View in PubMed
• Pediatric Nurses’ Role in Health Care Transition Planning: National Survey Findings and Practice Implications. J Pediatr Nurs. 2019 Nov – Dec; 49:60-66.. View in PubMed
• Editorial Reflections on Authorship. J Pediatr Nurs. 2019 Sep – Oct; 48:A9-A10.. View in PubMed
• A Concept Analysis of Transitions of Care for Population Health. Res Theory Nurs Pract. 2019 08 01; 33(3):257-274.. View in PubMed
• The Mix of Science, Community Beliefs and Health Practices Affecting Children: Part 2. J Pediatr Nurs. 2019 Jul – Aug; 47:A7-A8.. View in PubMed
• The Mix of Science, Community Beliefs and Health Practices Affecting Children: Part 1. J Pediatr Nurs. 2019 May – Jun; 46:A7-A8.. View in PubMed
• Incorporating Academic and Health-Related School Needs into Pediatric Nursing Practice. J Pediatr Nurs. 2019 Mar – Apr; 45:A7-A8.. View in PubMed
• Differences in continence rates in individuals with spina bifida based on ethnicity. J Pediatr Rehabil Med. 2019; 12(4):361-368.. View in PubMed
• An exploratory study of adolescents and emerging adults with spina bifida knowledge of their individual education program: Implications for health care transition planning. J Pediatr Rehabil Med. 2019; 12(4):393-403.. View in PubMed
• Generations X, Y, and Z. J Pediatr Nurs. 2019 Jan – Feb; 44:A7-A8.. View in PubMed
• The Development and Content Validation of a Self-reported Instrument to Explore the Nurse’s Role in Healthcare Transition Planning for Youth and Young Adults With Chronic Illness and/or Disability (NR-HCTP). J Pediatr Nurs. 2018 Nov – Dec; 43:56-61.. View in PubMed
• Immunizations: A Coherent Mission and Vision for Pediatric and Child Health Nursing Practice, Education, Research and Policy. J Pediatr Nurs. 2018 Sep – Oct; 42:A7-A8.. View in PubMed
• Special issue on the Care of the Hospitalized Child: Implications for Clinical Practice and Research. J Pediatr Nurs. 2018 Jul-Aug; 41:1-2.. View in PubMed
• The Use of iThenicate and Editorial Policy. J Pediatr Nurs. 2018 May – Jun; 40:A6.. View in PubMed
• Complementary and Integrative Health Approaches-Insights and Implications for Practice and Research. J Pediatr Nurs. 2018 Mar – Apr; 39:A6-A7.. View in PubMed
• Descriptive Analysis and Profile of Health Care Transition Services Provided to Adolescents and Emerging Adults in the Movin’ On Up Health Care Transition Program. J Pediatr Health Care. 2018 May – Jun; 32(3):273-284.. View in PubMed
• Promoting Excellence in Pediatric Nursing Practice and Science. J Pediatr Nurs. 2018 Jan – Feb; 38:i-iii.. View in PubMed
• Self-management and health care transition: Trials, tribulations and triumphs. J Pediatr Rehabil Med. 2017 Dec 11; 10(3-4):177-183.. View in PubMed
• An Integral Component of Pediatric Nursing Practice. J Pediatr Nurs. 2017 Sep – Oct; 36:A7-A8.. View in PubMed
• Self-management and Transition to Adult Health Care in Adolescents and Young Adults: A Team Process. Pediatr Rev. 2017 Jul; 38(7):305-319.. View in PubMed
• SPN Position Statement: Transition of Pediatric Patients Into Adult Care. J Pediatr Nurs. 2017 Jul – Aug; 35:160-164.. View in PubMed
• Special Issue on The Hospitalized Child: Research, Evidence and Service Models. J Pediatr Nurs. 2017 May – Jun; 34:1-3.. View in PubMed
• Call to Action: Addressing the Challenges Facing Pediatric Nursing. J Pediatr Nurs. 2017 Mar – Apr; 33:1-2.. View in PubMed
• Challenges Facing Pediatric Nursing. J Pediatr Nurs. 2017 Jan – Feb; 32:1-2.. View in PubMed
• Authors’ response to the letter to the editor pertaining to systematic review: Health care transition practice service models. Nurs Outlook. 2017 Jan – Feb; 65(1):8.. View in PubMed
• Focus on Autism Spectrum Disorder: Issues and Treatment Approaches. J Pediatr Nurs. 2016 Nov – Dec; 31(6):565-566.. View in PubMed
• Marijuana: The Societal and Health Paradox. J Pediatr Nurs. 2016 Jul-Aug; 31(4):369-72.. View in PubMed
• Authors Beware: Open Access Predatory Journals. J Pediatr Nurs. 2016 May-Jun; 31(3):233-4.. View in PubMed
• International and Interdisciplinary Identification of Health Care Transition Outcomes. JAMA Pediatr. 2016 Mar; 170(3):205-11.. View in PubMed
• New and Noteworthy. J Pediatr Nurs. 2016 Mar-Apr; 31(2):121-2.. View in PubMed
• Systematic review: Health care transition practice service models. Nurs Outlook. 2016 May-Jun; 64(3):229-43.. View in PubMed
• Advancing the Development of the Guidelines for the Nursing of Children, Adolescents, and Families: 2014 Revision: Process, Development, and Dissemination. J Pediatr Health Care. 2016 May-Jun; 30(3):284-8.. View in PubMed
• Movin’ On Up: An Innovative Nurse-Led Interdisciplinary Health Care Transition Program. J Pediatr Health Care. 2016 Jul-Aug; 30(4):323-38.. View in PubMed
• Transition Needs of Parents of Adolescents and Emerging Adults With Special Health Care Needs and Disabilities. J Fam Nurs. 2015 Aug; 21(3):362-412.. View in PubMed
• Uncharted Territory: Systematic Review of Providers’ Roles, Understanding, and Views Pertaining to Health Care Transition. J Pediatr Nurs. 2015 Sep-Oct; 30(5):732-47.. View in PubMed
• Brief Report: Adolescents’ Reasons for Participating in a Health Care Transition Intervention Study. J Pediatr Nurs. 2015 Sep-Oct; 30(5):e165-71.. View in PubMed
• Quite an Accomplishment! J Pediatr Nurs. 2015 Jul-Aug; 30(4):531. Betz CL , Martz Huth M . View in PubMed
• Testing the Transition Preparation Training Program: Well-being of relationships outcomes. J Pediatr Rehabil Med. 2015; 8(3):235-46.. View in PubMed
• Special issue on childhood overweight and obesity. J Pediatr Nurs. 2014 Nov-Dec; 29(6):491-2.. View in PubMed
• Exploration of internet use: profile and preferences of transition-aged adolescents with spina bifida. Pediatr Nurs. 2014 Jul-Aug; 40(4):173-8.. View in PubMed
• The health care transition research consortium health care transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014; 7(1):3-15.. View in PubMed
• [Validation of the IBS-SSS]. Z Gastroenterol. 2013 Oct; 51(10):1171-6.. View in PubMed
• JPN editorial guidance on the submission of student papers. J Pediatr Nurs. 2013 Nov-Dec; 28(6):519-20.. View in PubMed
• Voices not heard: a systematic review of adolescents’ and emerging adults’ perspectives of health care transition. Nurs Outlook. 2013 Sep-Oct; 61(5):311-36.. View in PubMed
• Conservatorship: a nursing practice concern. J Pediatr Nurs. 2013 Sep-Oct; 28(5):419-20.. View in PubMed
• Claim it: the heritage of clinical innovations. J Pediatr Nurs. 2013 Jul-Aug; 28(4):313-4.. View in PubMed
• Practice-based child health nursing research networks. J Pediatr Nurs. 2013 May-Jun; 28(3):211-2.. View in PubMed
• The quandary of the costs of care: nursing solutions. J Pediatr Nurs. 2013 Apr; 28(2):103-4.. View in PubMed
• A survey of California nursing programs: admission and accommodation policies for students with disabilities. J Nurs Educ. 2012 Dec; 51(12):676.. View in PubMed
• Change is coming. J Pediatr Nurs. 2013 Jan; 28(1):1-2.. View in PubMed
• Opportunities to create nurse-directed, evidence-based services and programs for children and youth with special health care needs and developmental disabilities. J Pediatr Nurs. 2012 Dec; 27(6):605-6.. View in PubMed
• Health care transition for adolescents with special healthcare needs: where is nursing? Nurs Outlook. 2013 Sep-Oct; 61(5):258-65. Betz CL . View in PubMed
• The tragedy and horror of human trafficking of children and youth. J Pediatr Nurs. 2012 Oct; 27(5):433-4.. View in PubMed
• Tough times for children. J Pediatr Nurs. 2012 Aug; 27(4):291-2.. View in PubMed
• Complications in endonasal sinus surgery: a 5-year retrospective study of 2,596 patients. Eur Arch Otorhinolaryngol. 2013 Jan; 270(1):141-8.. View in PubMed

• Brown, Hilary
• Hudson, Sharon
• Unger, Jennifer
• Peters, Anne
• Gold, Jeffrey
• Mirzaian, Christine